Cauda Equina Foundation, Inc. serves to improve the quality of life and care for individuals living with cauda equina syndrome (CES) and associated disorders. 

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Indications for MRI in the Emergency Setting to Rule Out Cauda Equina Syndrome





Cauda Equina Foundation In Action



Rare Disease Day 2019

Cauda Equina Foundation attended Rare Disease Day at the National Institute of Health to educate healthcare providers about cauda equina syndrome. This was the year we exhibited the many faces of cauda equina syndrome. 

Support Cauda Equina Foundation

Improve the quality of life and care for individuals living with cauda equina syndrome

Support Us by Shopping!
Now with every purchase made through Amazon Smile, Cauda Equina Foundation will receive 0.5% of the proceeds. It doesn't cost you more, and you get to feel good about giving while shopping. 

Introducing Cauda Equina Syndrome SWAG! Get your swag today to promote Cauda Equian Syndrome awareness. This Cauda Equina Syndrome swag not only raises awareness but buying our swag raises money for the foundation to achieve its mission to improve the quality of life and care for individuals living with cauda equina syndrome. Visit our store today!



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Birthday Fundraiser

Set up a fundraiser on Facebook it's a fast and easy way to help Cauda Equina Foundation raise money for to support its mission.


Our research initiatives include:


1. Natural History of Disease

2. Sociological & Economical Impact

3. Epidemiology

4. Standards of Care

5. Pathophysiology

6. Patient Outcome Measures

We are also working to expand our Patient Support Program, build our Patient & Caregiver Leadership Board, and continue educating the community and raising awareness of CES. Every dollar counts. Cauda Equina Foundation is a 100% volunteer organization. Help us achieve our mission and goals by setting up a fundraiser today! Click the balloon to learn more.

Cauda Equina Syndrom
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2021 Strategic Plan
  • Launch Patient Registry

  • Increase Marketing to recruit more patients into the patient registry

  • Recruit Additional Specialist for Medical Board

  • Launch Patient Champion Consortium (Launch Patient & Caregiver Action Committee)

  • Host Virtual Patient Meetups

  • Host Q & A sessions with Experts and Patients

  • Launch Podcast

  • Expand YouTube Channel

  • Expand Patient Mentorship Program

  • Initiate IRB Accreditation

  • Attend NORD Summits

  • Attend NIH and FDA RDD

  • Expand CES Store for earned income revenue sustainability

  • Attend World Orphan Drug Congress

  • Initiate infrastructure for genome project

  • Initiate infrastructure for MRI review study

  • Increase patient membership 15%

  • Build CEF membership options

  • Start Standards of Care Research

  • Set up Memberships

  • Secure an Endowment

  • Set up Internships

  • Expand Volunteer Program

  • Recruit a Volunteer Manager

  • Provide Research Grant

  • Develop CES Specialty Provider List

  • Develop Employment Training Program for individuals with CES that need to change careers

  • 1st Annual International CES Symposium

 © 2020 Cauda Equina Foundation

P.O. Box 381

Howey in the Hills, FL 34737