First Annual Cauda Equina Syndrome International Virtual Symposium
First Annual Cauda Equina Syndrome International Virtual Symposium

First Annual International Cauda Equina Syndrome Symposium May 14-16, 2021

Kickoff Party and Social Networking Event
Kickoff Party and Social Networking Event

Kickoff Party and Social Networking Event: May 14, 2021 @ 7:00 PM EST- First Annual International Cauda Equina Syndrome Virtual Symposium

First Annual Cauda Equina Syndrome International Virtual Symposium
First Annual Cauda Equina Syndrome International Virtual Symposium

Donations from people like you make it possible for us to host symposiums like this one. They also help us host member support sessions, other events and services. A huge thank you to our donors for making this symposium possible!

First Annual Cauda Equina Syndrome International Virtual Symposium
First Annual Cauda Equina Syndrome International Virtual Symposium

First Annual International Cauda Equina Syndrome Symposium May 14-16, 2021

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Cauda Equina Foundation, Inc. serves to improve the quality of life and care for individuals living with cauda equina syndrome (CES) and associated disorders. 

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Copy of  Website CES Member Virtual Meet

 News 

Cauda Equina Syndrome Virtual Member Meetup

Wednesday, March 31, 2021

6:00 PM EST to 8:00 PM EST

Meet others that understand your journey and get the support you've been looking for.

*Please note the time. 

Support Cauda Equina Foundation

Improve the quality of life and care for individuals living with cauda equina syndrome

Support Us by Shopping!
 
Now with every purchase made through Amazon Smile, Cauda Equina Foundation will receive 0.5% of the proceeds. It doesn't cost you more, and you get to feel good about giving while shopping. 

Introducing Cauda Equina Syndrome SWAG! Get your swag today to promote Cauda Equian Syndrome awareness. This Cauda Equina Syndrome swag not only raises awareness but buying our swag raises money for the foundation to achieve its mission to improve the quality of life and care for individuals living with cauda equina syndrome. Visit our store today!

 

 

Start a Facebook

Birthday Fundraiser

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Set up a fundraiser on Facebook it's a fast and easy way to help Cauda Equina Foundation raise money for to support its mission.

 

Our research initiatives include:

 

1. Natural History of Disease

2. Sociological & Economical Impact

3. Epidemiology

4. Standards of Care

5. Pathophysiology

6. Patient Outcome Measures

We are also working to expand our Patient Support Program, build our Patient & Caregiver Leadership Board, and continue educating the community and raising awareness of CES. Every dollar counts. Cauda Equina Foundation is a 100% volunteer organization. Help us achieve our mission and goals by setting up a fundraiser today! Click the balloon to learn more.

Cauda Equina Syndrom
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2021 Strategic Plan
  • Launch Patient Registry

  • Increase Marketing to recruit more patients into the patient registry

  • Recruit Additional Specialist for Medical Board

  • Launch Patient Champion Consortium (Launch Patient & Caregiver Action Committee)

  • Host Virtual Patient Meetups

  • Host Q & A sessions with Experts and Patients

  • Launch Podcast

  • Expand YouTube Channel

  • Expand Patient Mentorship Program

  • Initiate IRB Accreditation

  • Attend NORD Summits

  • Attend NIH and FDA RDD

  • Expand CES Store for earned income revenue sustainability

  • Attend World Orphan Drug Congress

  • Initiate infrastructure for genome project

  • Initiate infrastructure for MRI review study

  • Increase patient membership 15%

  • Build CEF membership options

  • Start Standards of Care Research

  • Set up Memberships

  • Secure an Endowment

  • Set up Internships

  • Expand Volunteer Program

  • Recruit a Volunteer Manager

  • Provide Research Grant

  • Develop CES Specialty Provider List

  • Develop Employment Training Program for individuals with CES that need to change careers

  • 1st Annual International CES Symposium