Cauda Equina Foundation, Inc. serves to improve the quality of life and care for individuals living with Cauda Equina Syndrome.

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Cauda Equina Syndrome News 

Breaking News

COVID-19 &

Cauda Equina Syndrome:

What you need to know

Indications for MRI in the Emergency Setting to Rule Out Cauda Equina Syndrome





Cauda Equina Foundation In Action



Rare Disease Day 2019

Cauda Equina Foundation attended Rare Disease Day at the National Institute of Health to educate healthcare providers about cauda equina syndrome. This was the year we exhibited the many faces of cauda equina syndrome. 

Support Cauda Equina Foundation

Improve the quality of life and care for individuals living with cauda equina syndrome

Support the Organization by Shopping!
Now with every purchase made through Amazon Smile, Cauda Equina Foundation will receive 0.5% of the proceeds. It doesn't cost you more, and you get to feel good about giving while shopping. 

Introducing Cauda Equina Syndrome SWAG! Get your swag today to promote Cauda Equian Syndrome awareness. This Cauda Equina Syndrome swag not only raises awareness but buying our swag raises money for the foundation to achieve its mission to improve the quality of life and care for individuals living with cauda equina syndrome. Visit our store today!



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Birthday Fundraiser

Set up a fundraiser on Facebook it's a fast and easy way to help Cauda Equina Foundation raise money for to support its mission.


Our research initiatives include:


1. Natural History of Disease

2. Sociological & Economical Impact

3. Epidemiology

4. Standards of Care

5. Pathophysiology

6. Patient Outcome Measures

We are also working to expand our Patient Support Program, build our Patient & Caregiver Leadership Board, and continue educating the community and raising awareness of CES. Every dollar counts. Cauda Equina Foundation is a 100% volunteer organization. Help us achieve our mission and goals by setting up a fundraiser today! Click the balloon to learn more.

Cauda Equina Syndrom
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Our 2020 Focus 


 1. Research

  1. Natural History of Disease

    1. Symptoms​

    2. Stages

    3. Spectrum

    4. Definition

    5. Disability  

  2. Sociological & Economical Impact

  3. Epidemiology

  4. Prevalence 

  5. Standards of Care

  6. Pathophysiology

  7. Patient Outcome Measures

  8. Patient Registry


2. Patient Support Program Expansion

  1. Build Patient & Caregiver Leadership Board

  2. Expand Paintability Program Virtually 

  3. Build Face to Face Support Virtually

  4. Develop Help Line

3. Education

  1. Provide Community Education

  2. Provide Patient Education

  3. Provide Healthcare Provider Education

  4. First Annual Cauda Equina Syndrome  Summit Virtual


4. Advocacy

  1. CES is a Chronic Illness Campaign

  2. Support Chronic Pain Management       Patient Rights

  3. Accessibility and Anti-discrimination of individuals with disabilities

  4. Access to Affordable Healthcare, Alternative Therapies, and Adaptive Equipment

5. Partnerships

  1. NORD- National Organization of Rare Disorders

  2. Inspire

  3. ACMCRN- Arachnoiditis & Chronic Meningitis Collaborative Research Network

 © 2020 Cauda Equina Foundation

P.O. Box 381

Howey in the Hills, FL 34737


Cauda Equina Foundation in Action; fighting for you.