© 2019 Cauda Equina Foundation

Cauda Equina Syndrome is a life-changing chronic illness that affects every aspect of the individual's life from mobility, relationships, finances, and mental well-being. Once diagnosed, few individuals make a full recovery. Currently, research is limited, that is why research is one of our four main focus areas.


We have several research initiatives in progress. Our current research focus is to:

  • Develop Clinical Practice Guidelines and Protocols for Acute Cauda Equina Syndrome

  • Develop Treatment Recommendations for Chronic Cauda Equina Syndrome

  • Understand best surgical technique for preservation of nerve function

  • Develop a Cauda Equina Syndrome Severity Scoring System

  • Prevent and/or Reverse Neurological Devastation


We also provide education to healthcare providers and patients, patient and family support, and we promote and participate in advocacy of Cauda Equina Syndrome.


With your help, we can one day reach our vision to eradicate the neurological devastation caused by Cauda Equina Syndrome. Donate today to improve the quality of life and care for individuals living with Cauda Equina Syndrome.



Sincere gratitude,


Amanda Proctor, B.S.-RRT

President & CEO

Cauda Equina Foundation, Inc.


*Cauda Equina Foundation is a 501(c)(3) charitable nonprofit. 

EIN- 81-2635043


Mail donation checks and money orders to:


Attention: Development

P.O. Box 381

Howey in the Hills, FL 34737




Need more ways to support Cauda Equina Foundation?

Shop Amazon Smile


Now with every purchase made through Amazon Smile, Cauda Equina Foundation will receive 0.5% of the proceeds. It doesn't cost you more, and you get to feel good about giving while shopping. 

Set up a Facebook Fundraiser

  • Black Facebook Icon

Setting up a fundraiser on Facebook is a fast and easy way to help Cauda Equina Foundation raise money for Cauda Equina Syndrome Research, Education, Advocacy, and Patient Support. You can even do it as a birthday fundraiser. We are currently raising funds for research and need $35,000.00 by September 30, 2018. Click the balloon to learn more.

CES Swag!

Introducing Cauda Equina Syndrome SWAG! to promote advocacy and awareness. We teach healthcare providers to evaluate ALL back pain patients as Cauda Equina Syndrome until proven otherwise. This Cauda Equina Syndrome swag not only raises awareness but buying our swag raises money for the foundation to achieve its mission to improve the quality of life and care for individuals living with cauda equina syndrome.

Check back soon for the next available swag and be the first to get the newest Cauda Equina Syndrome Awareness shirt!