Cauda Equina Syndrome: A Message to My Doctors
I came to you for help, and you failed me miserably. I was injured, and to the Dr.’s in the first hospital, I would tell you that you should have taken an MRI when I came in with pain from my back that went into my left hip, knee, and ankle. You should join the CaudaEquinaFoundation.org and get educated on the red flag symptoms of Cauda Equina Syndrome.
My primary Dr. took one look at me and saw that something was very wrong. He sent me to the orthopedic.
To the orthopedic I would say: you should have ordered an MRI, but you never did. I progressively got worse before your eye’s. You saw the pain that I had when I tried to put any weight down on my left leg. The medication didn’t work and I told you that I did not want to mask the pain, something was very wrong. By the time you saw me that one last time, you saw how my right foot had given out just like my left. You should have sent me to the ER that day, but you didn’t.
My body was shouting out the red flag symptom’s of Cauda Equina Syndrome. You missed every single one of them. I would direct you to the CaudaEquinaFoundation.org to get educated. I would tell you that if you had done an MRI when I first saw you, this would not have gone on for a year. I never would have gotten to this point.
To the second hospital that I went to on two separate occasions I would say that your ER Dr.’s misdiagnosed me with sciatica both times. I would say you need to get educated on the red flag symptom’s of Cauda Equina Syndrome and that you would benefit by joining the CaudaEquinaFoundation.org where you can get educated. We also have wall poster’s that you can get for your hospital on the red flag symptom’s of CES.
To the surgeon that did my surgery I would say thank you for getting me out of the excruciating pain, but you were wrong as well. I should have had surgery immediately, when you diagnosed me with the herniated disc pressing on my Cauda Equina. Instead you thought I had gone on long enough and the damage was already done; read the information about the differences between Incomplete and Complete Cauda Equina Syndrome.
The damage was still being done while I waited in the hospital room for two day’s. I never had to get this bad. You too could learn from the CaudaEquinaFoundation.org
Why It Is Important To Get Educated On The Red Flags Symptoms of Cauda Equina Syndrome
I would tell my first primary care Dr. that I had after my surgery, thank you. Thank you for being honest with me and admitting that you had heard of Cauda Equina Syndrome, but you didn’t know what to do. Thank you for caring and helping me when I needed help the most. Thank you for showing me that there are still some good Dr.’s out there, but for me you are few and in between.
To the neurologist that I went to, I would tell you that you were a big disappointment. I was looking forward to my visit with you, as I heard you’re the type of Dr. that has the answers to Cauda Equina Syndrome. I had question’s about my condition and you didn’t even know what the Cauda Equina was. I had to explain it to you.
You also shouted at the top of your lung’s that you weren’t giving out any medication, which I never asked for. I would have made the visit briefer if I could have gotten out of the stupid recliner that you had me sit in. The day that I went to your office was the first time that I used my walker out. I’m sorry I even went to you.
To my pain management Dr. I would say thank you, and I wish you were cheaper. My pain management Dr. also knows what Cauda Equina Syndrome is, and he never treated me like I was some kind of freak. For that I thank you. I thank you for being the only Dr. that could finally get my blood pressure down and for actually caring enough to do it. You were the only Dr. that did little test’s on my leg’s and feet, and I appreciated how you made me feel. You are a Dr. that care’s and for me that mean’s a lot, because I didn’t ask for a rare condition.
When I could afford you, I looked forward to seeing you. Not because you were giving me medication, but because you truly cared about me. It was nice to know that once a month I had a Dr. that I could trust and you showed such compassion. Thank you.
To my next primary Dr. I would say that you failed me miserably. You didn’t care about me at all. You didn’t care that I have Cauda Equina Syndrome and I needed medical attention more than you knew or even cared. You told me it was “some kind of bad lumbar.”
I asked your staff numerous time’s if they could recommend somebody for me to talk to, but they never got back to me, and I was having a mental breakdown.
When a patient tells you that they need to talk to someone, you should listen. I cried out for help a few times, you should have followed through. I was mourning the loss of my body and life as I knew it. That is a very dark place to be in. You can only hold on for so long, I reached out for help and you never got back to me. I attempted suicide because you didn’t care, nobody did.
Why Providers Should Get Educated on CES
I went numb from my waist down, like I did before my surgery after that rude awakening. My left foot is worse than it was before that incident. I also went back to the hospital where the surgeon was and told a few select people about the incident. I had another MRI taken, and the surgeon said my Cauda Equina Surgery took, but if I still had numbness to go back and see him. I didn’t bother. Apparently he seems to think that I’ve been healed since the surgery, which was two year’s ago. I've had the radiculopathy and saddle anesthesia ever since I opened my eye's from the surgery. I don't know who he think's he's kidding.
I stayed in bed a lot, and used the roll on lidocaine that I bought. The numbness subsided, but my left foot is still worse and I don’t think it’s going to come back this time. It’s always been really tender on the left side of my back since then, but the surgeon said the Cauda Equina surgery took, so I guess when he looked at the MRI nothing bad showed up. I have not been back to a Dr. since and I don’t plan on going to one any time soon.
My first husband died from medical negligence twenty-four years ago because you said he was too young to have a heart attack. He was thirty years old. I never thought anything like this would happen to me, but here we are.
The irony is that one day I am going to need a Dr. and I am afraid to go. You have done nothing but hurt me because your ego’s are too big to learn from a patient. You seem insulted, when I am the one that should feel insulted, but I don’t. I feel ashamed, and I haven’t done anything wrong.
You terrify me and I do not trust you. Now, not only do I have Cauda Equina Syndrome, but I have white coat syndrome too.