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Cauda Equina Warriors Support Group and Discussion Community 

Isolation is a word we hear time and time again with regards to Cauda Equina Syndrome. Those around individuals with Cauda Equina Syndrome confuse the chronic illness with "just having a bad back."


When you’re going through a flare-up you can spend days at a time in bed, unable to leave your house and when you do, people don’t understand how sick you are because “you don’t look like you’re sick.”


Cauda Equina Syndrome can be an invisible illness, people can't see how affected those living with the illness really are on the inside. Even on a good day, it can be hard to function as a contributing member of society, let alone the household.


Cauda Equina Warrior Support and Discussion Community, a new online community launched by Cauda Equina Foundation in partnership with Inspire, provides individuals with Cauda Equina Syndrome and their loved ones with the opportunity to engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of the disease.

Cauda Equina Warrior Support and Discussion Community will serve as a 24/7 online resource allowing members to post questions, tips, engage with others and build relationships. Members are encouraged to share their stories and learn from the experiences of other people impacted by this life-altering chronic illness.

We invite you to be the first to try out our new Cauda Equina Warriors Support Community on Inspire. Inspire is an online community with millions of participants. This support community is searchable by topic, and anonymous so you can feel safe posting no matter what the topic. Inspire also allows members to set up friend circles and messaging in a safe environment. There is even a place for journaling. Give it a try, leave your stories, start the conversations, Be the First by visiting

Join today and start connecting!

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